Well, her 2nd birthday (they never said that she would live to the age of 2) is August 29th, and it just so happens that there is a fund raiser on August 29th in Park City; the Utah Chapter of Families of Spinal Muscular Atrophy Walk-n-Roll. The FMSA is inviting friends, family, patients, and anyone else interested to participate in the fund raiser to help find a cure for the number 1 genetic killer in infants.
To register, or even just to donate you can visit: FSMA
If you want to join Team Brynlee on the Walk-n-Roll (she will be rolling along in her new little wheel chair) you can register under my sister-in-law: Tara Liston
Here is the fund raising Biography for Team Brynlee:
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See, isn't she the cutest!
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