Saturday, August 15, 2009

SMA Walk-n-Roll

So I have the cutest little niece, Brynlee, but when she was around 6 months old her parents noticed something wrong with her legs. They took her into the doctor, and to make a long story short, they found out that she has SMA (Spinal Muscular Atrophy). SMA is a disease that affects the muscles in her little body, it basically prevents them from working like muscles should work. She was unable to lift her legs, and the one that gets most children under the age of 2 is that she is unable to cough and struggles to breath.

Well, her 2nd birthday (they never said that she would live to the age of 2) is August 29th, and it just so happens that there is a fund raiser on August 29th in Park City; the Utah Chapter of Families of Spinal Muscular Atrophy Walk-n-Roll. The FMSA is inviting friends, family, patients, and anyone else interested to participate in the fund raiser to help find a cure for the number 1 genetic killer in infants.

To register, or even just to donate you can visit: FSMA
If you want to join Team Brynlee on the Walk-n-Roll (she will be rolling along in her new little wheel chair) you can register under my sister-in-law: Tara Liston

Here is the fund raising Biography for Team Brynlee:

See, isn't she the cutest!

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